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I was dx 1990,ON-legally blind, foot drop,etc. One month later a football sized tumor was found in my uterus. Had hysterectomy. Off work for 8weeks, during that time my eyes started improving, in 8 months they were20/20, been so ever since. My Dr. kept pushing Copaxone (he was a researcher for it as well) but I refused until. 1999 when I became "MS Numb" neck to toes. Solumedral fixed the exacerbation.
Copaxone was ok, though I DESPISE the idea of a drug,"we are not sure how it works" and "We don't know what untoward long term effects may be." (oh,and in 1995 I got ovarian cancer---I TOLD him to remove the ovaries!)(it is long gone now, no chemo,I never even took aspirin till I was in my 30s) Anyhoo, I was the 10% who get the "immediate reaction," after about 3 months, called medics, it feels like geart attack and your entire body is BRIGHT RED. Still I took t, as my Dr. said "it will ony happen once." (Teva said differebtly) Well, that was 8 years ago and I still take, but hate every shot. My partner does them all now. I do it about 5x week, if we feel like it. Know people who have tried every drug, all same results...one week,"Diane! It is a miracle! Love it!" Few weeks later, "I am going to try something else." I stopped Copax once, this year, for a month, nothing. My new Dr says my MS inflammation has ended. What I need now is repair. From here on I will "dwindle." These drugs---I trust NONE of them. Stem cells may help us. Years off. I am 50. MY current president(excuse me while I vomit) Bush, vetoes every stem cell request he gets. The Copaxone sinking of skin:
Teva said for years that these would go away, NOW they say they are permanent. My once musclar legs look a mess, my arms that lifted weights look hideous. Thanks Copaxone. Well, we all must follow our guts and try whatever, or nothing.