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Hi all

Day 1
Thanks for the words of encouragement, so today was the day, sleeping last night was not easy, due to my over acting brain doing its mind wondering game, so a little tired today. Anyway how did it go well, the MS Liaison Nurse that came to show me what to do was lovely was hear about 2 hours and explained everything I needed to know.

I have chosen the Auto Inject method as Im a coward and do not if I would be able to manage it as a self injection., so under the guidance of Paula my MS Nurse have managed to do the first injection, with no problems, the tiny bee sting feeling after the injection lasted about 5 minutes and no bruising at all, no other side effects that had been mentioned either, though I do understand these are not always apparent at the start so will have to wait and see on that one. Felt fine for the rest of the day

Day 2

Paula came back today and was a little late, so when she got here I had everything ready, had remembered to get the injection out of fridge, had loaded it into auto inject, and was ready to go, so felt really confident about things, so we have decided that I will do it on my own over weekend and she will ring me on Monday

Day 3

What a bad start to Day 3, With my Daughter not being at school today Im not happy at the moment about her seeing me inject at the moment, their was I hiding in the kitchen trying to do injection while was while she was playing on the PC. I rushed it has I could her coming, pushed to hard on skin, gave myself a vile nasty rash and a bruise, and it hurt, so there is a lesson to be learned here, dont try and keeps secrets from children this is going to be part of my life, I cannot change that, and we must help each other with lots of love and support to each other and include these injections as part of every day life so she is not scared by them.

Day 5

Sundays off for good behaviour, so its Monday and have managed yesterdays and todays injections just fine, still no side effects and I am trying to stay relaxed when doing the injections, it is not as bad as I had feared. So will add to this diary maybe once a week unless I have anything to add. In the long term hope my little messages help others

Denise

Day 6 to Day 10

The only problem I seem to be having is doing the injection, no side effect lets hope it lasts

Day 11

Woke this morning feeling like pants, flu like sytoms, and a huge bruise and welt from injection yesterday, have spoken to MS Nurse and it seems that these can be common side effects from Copaxone, which I new already but needed the reassurance from her that is normal. Took a while today to do the injection today
As Im scared that I will get some of the other side effects now.

Day 12

I now have two bruises and two welts now, so it seems that maybe Im going to get this each time, I inject. Have tried putting the ice pack straight on after injection and witch hazel, both of which have no effect, so anybody ready this has anything else I could try please let me know. If I continue to bruise like this I will run out of places to do the injection at this rate.

Day 14

So did I get this wrong starting copaxone, feel worse today than ever, legs and arms are marked from injections, and feel very negative today, but Im sure it will pass and things will get better.

Day 15

Yesterday I had to ask my husband for help in doing the injection as it needed to be done in my bum and with all the will in the world my arms would not reach that far.
He hates needles and was very apprehensive about doing it, but he did it and so far no bruise or welt so maybe the bums the place to do them, or maybe he is just better than me at doing them.

Day 16

Flu systems easing today and bruises going so maybe it was just a short lived side effect, I will continue with it, I did say when I started this diary I would post the good bits and the bad bits and will continue to so

A more positive person today

Denise

Hi Nakisha and thanks,

I have not posted for a while, (a long while just noicted)

I Hope that Betersearon works better for you.

I am in a replaspe at the moment, another attack of ON, that does not want to go away, I am back on steriods and still using coxpaxone, but I am not sure for how much longer, I hate the everday injectios, and have starting having a couple of side effects that I am not so keen on.

The first is I get a pain in my chest not long after injection, which does not last long, but long enough to annoy, and the worse one Is having a period lasting 3 weeks with 1 week off, which in itself makes me tired all the time, but makes our sexlife intresting, suppose its better than using I have headache.

I go back to Oxford at the end of Feb so will talk to my neuro about it.

Denise

So confused now spent 2 hours with my ms nurse today, and she says that it can take 6 to 9 months to kick in, and that it will not stop attacks just reduce them, told her that I hate doing the jabs, and that maybe I should stop.

After a very long talk, I have agreed to carry on with them for now, this is not what I wanted but to keep the peace with me mum who went mad and Paul my rock who got very upset, now I know from an email I have had that is because they see it as the only thing, that they know of that could help.

Good news is that she is changing my neuro from old faggot chops to the new one who is very young and full of ideas, so very happy about that.

Denise

Hi Cecillia

I Dont think the period thing is conected with the copaxone, after the steriods last year mine stopped and never made a return until early this year, but only lasted that the month, I had another dose of steriods in Feb and that stopped them again, so I think it is the steriods that are causing the stopping, they have still stopped, this was mentioned in another post will try and find it

Denise

p198.ezboard.com/fmsrcsha...4975.topic
Both Ann and Denise mentioned it here

Denise

Hi Jo

Thanks for your reply, even more worried now but will check with GP as neuro is known as faggot face and is not much cop, i think it may me be time to chuck these jabs, as they cause more stress just doing them.

Time to think