http://msrcsharing.yuku.com/topic/2056/t/My-Diary-with-Copaxone.html en-us Copyright 2006, Yuku feeds@yuku.com (FeedMaster) webmaster@yuku.com (WebMaster) Tue, 27 Sep 2005 10:40:12 GMT Sat, 29 Mar 2008 11:32:37 GMT Yuku Feeds 1.0 http://blogs.law.harvard.edu/tech/rss 60 http://static.yuku.com//feed/bypass/images/button-yuku.png http://msrcsharing.yuku.com/topic/2056/t/My-Diary-with-Copaxone.html Yuku - free hosted forums and profiles 88 31 {pics-1.1 "http://www.icra.org/ratingsv02.html" l gen true for "http://yuku.com" r (nz 1 vz 1 lz 1 oz 1 cz 1 ) "http://www.rsac.org/ratingsv01.html" l gen true for "http://yuku.com" r (n 0 s 0 v 0 l 0 )) Search Domain q http://yuku.com/search/direct/ http://msrcsharing.yuku.com/reply/43114/t/My-Diary-with-Copaxone.html#reply-43114

You may also like to pose your questions on the main All About MS board as that gets a lot more "traffic"

kind regards

squiffs ]]> feeds@yuku.com (squiffy2) http://msrcsharing.yuku.com/sreply/43114 Sat, 29 Mar 2008 11:32:36 GMT http://msrcsharing.yuku.com/reply/43113/t/My-Diary-with-Copaxone.html#reply-43113 Personally i like the idea of alternative therapies and would be grateful if anyone... ]]> feeds@yuku.com (sphere1965) http://msrcsharing.yuku.com/sreply/43113 Sat, 29 Mar 2008 11:23:48 GMT http://msrcsharing.yuku.com/reply/42939/t/My-Diary-with-Copaxone.html#reply-42939
Well back into copaxone, well was not using auto injector and that seemed to be working well, until the welts came back but it seems that if you cant take penecilian then copaxone is a no no , not sure how true that is, so on the case will let you know.

Short but sweet bye four now

Denise
]]> feeds@yuku.com (vespula) http://msrcsharing.yuku.com/sreply/42939 Tue, 18 Mar 2008 22:50:39 GMT http://msrcsharing.yuku.com/reply/19082/t/My-Diary-with-Copaxone.html#reply-19082
After my last my post back in April, I did carry on with copaxone, and still get the nasty site reactions but not as much and only in my legs.

On the positive no serious relapses since April

Anne hope you are now well over your nasty bug

Denise ]]> feeds@yuku.com (vespula) http://msrcsharing.yuku.com/sreply/19082 Mon, 17 Dec 2007 13:48:10 GMT http://msrcsharing.yuku.com/reply/19081/t/My-Diary-with-Copaxone.html#reply-19081
Like you I don't relish the thought of daily injections but I DO know thatI have had the best 16 months since I started on this and although I am quite poorly at the moment with a general virus type thing, it looks... ]]> feeds@yuku.com (Cecilia Duracell Bunny) http://msrcsharing.yuku.com/sreply/19081 Sat, 03 Nov 2007 14:32:05 GMT http://msrcsharing.yuku.com/reply/19080/t/My-Diary-with-Copaxone.html#reply-19080 Copaxone was ok, though I DESPISE the idea of a drug,"we are not sure how... ]]> feeds@yuku.com (Stellarlife) http://msrcsharing.yuku.com/sreply/19080 Sat, 03 Nov 2007 04:26:20 GMT http://msrcsharing.yuku.com/reply/19079/t/My-Diary-with-Copaxone.html#reply-19079
BUT please note that what (little) I have seen so far is that it is to be for SEVERE RRMS -and we have yet to see what severe means in their terms. I was at a talk given by an eminent MS doctor last year and he felt that it would be prescribed for severe cases where other ABC type drugs had been tried and not been effective.

Don't want to rain on anyone's parade but feel folks shouldn't... ]]> feeds@yuku.com (Cecilia Duracell Bunny) http://msrcsharing.yuku.com/sreply/19079 Sat, 06 Oct 2007 09:16:32 GMT http://msrcsharing.yuku.com/reply/19078/t/My-Diary-with-Copaxone.html#reply-19078
I had missed your diary before, and it is sad to read that it was unfortunately short. I do hope you are holding up well since your last entry. I remember Copaxone well for the injection ritual too, and because it made absolutely no difference to me, I am actually taking nothing now. I wonder when you say "have stopped it, waiting to try something else" - would that something else be Tysabri ?

I see you are in the UK and in July it passed muster by the... ]]> feeds@yuku.com (MackyG7) http://msrcsharing.yuku.com/sreply/19078 Sat, 06 Oct 2007 01:50:41 GMT http://msrcsharing.yuku.com/reply/19083/t/My-Diary-with-Copaxone.html#reply-19083
Interesting reading your Diary.

I am a 35 year old male, I live in South Africa. I was diagnosed with MS about 10 years ago, I had blurry vision and my face was numb for about a month. I was completely free of any symptoms after that. I had a relapse in Dec this year, both my legs went numb. After a 2 week stint in the hospital, being given Cortisone intravenously, I started on Betaferon about 4 months ago. I inject every second day, I am used to the injections, but... ]]> feeds@yuku.com (Unregistered(d)) http://msrcsharing.yuku.com/sreply/19083 Tue, 24 Jul 2007 10:05:50 GMT http://msrcsharing.yuku.com/reply/19077/t/My-Diary-with-Copaxone.html#reply-19077 waiting to try something else.

Copaxone is good for a lot of people so please do not let my experience put any one off trying it.

But so far no side effects from stopping it

Den

feeds@yuku.com (vespula) http://msrcsharing.yuku.com/sreply/19077 Sat, 14 Apr 2007 21:54:41 GMT http://msrcsharing.yuku.com/reply/19076/t/My-Diary-with-Copaxone.html#reply-19076 feeds@yuku.com (Unregistered(d)) http://msrcsharing.yuku.com/sreply/19076 Tue, 31 Oct 2006 16:41:15 GMT http://msrcsharing.yuku.com/reply/19075/t/My-Diary-with-Copaxone.html#reply-19075
I have been on copaxone now for 13 months and I feel I have given it a good go. A recent MRI I had to test for devics showed no more lesions so the question is..... is it doing its job or should I bin the copaxone and try something else LDN maybe if neuro agrees that is

Denise... ]]> feeds@yuku.com (vespula) http://msrcsharing.yuku.com/sreply/19075 Tue, 24 Oct 2006 08:09:26 GMT http://msrcsharing.yuku.com/reply/19074/t/My-Diary-with-Copaxone.html#reply-19074
Denise x

beautiful-bungalow

]]> feeds@yuku.com (vespula) http://msrcsharing.yuku.com/sreply/19074 Wed, 23 Aug 2006 16:39:30 GMT http://msrcsharing.yuku.com/reply/19073/t/My-Diary-with-Copaxone.html#reply-19073

Take care of yourself

Cecilia ]]> feeds@yuku.com (Cecilia Duracell Bunny) http://msrcsharing.yuku.com/sreply/19073 Wed, 23 Aug 2006 16:26:18 GMT http://msrcsharing.yuku.com/reply/19072/t/My-Diary-with-Copaxone.html#reply-19072 feeds@yuku.com (vespula) http://msrcsharing.yuku.com/sreply/19072 Tue, 22 Aug 2006 21:27:20 GMT http://msrcsharing.yuku.com/reply/19071/t/My-Diary-with-Copaxone.html#reply-19071
Probably best to weigh things up for the next few weeks - just try not to overload your brain with information. I know I did when making my choice!!

Cant really offer any advice but I just feel that anything I can do to try and take some sort of control over this thing has to be a positive so when it came down to it, thats kind of how I decided.

Please keep in touch and let me know how you get on. I'll be thinking about you.

Denise xx ]]> feeds@yuku.com (weedenise) http://msrcsharing.yuku.com/sreply/19071 Wed, 28 Jun 2006 20:47:03 GMT http://msrcsharing.yuku.com/reply/19070/t/My-Diary-with-Copaxone.html#reply-19070 the ms nurse came out and we both decided i needed a few weeks to decide that i was doing the right thing for me at the moment as i was only diagnosed 4 months ago. Hope things are going ok with you, thanks for asking about me! Still think i will be starting but im going to wait a few weeks.

keep in touch, sue ]]> feeds@yuku.com (boozysuzy) http://msrcsharing.yuku.com/sreply/19070 Wed, 28 Jun 2006 20:32:00 GMT http://msrcsharing.yuku.com/reply/19069/t/My-Diary-with-Copaxone.html#reply-19069
Was just wondering how you were doing with the injections?

Hope you're well.

Denise xx ]]> feeds@yuku.com (weedenise) http://msrcsharing.yuku.com/sreply/19069 Fri, 23 Jun 2006 19:58:02 GMT http://msrcsharing.yuku.com/reply/19068/t/My-Diary-with-Copaxone.html#reply-19068 Boozy susy, you are on your... ]]> feeds@yuku.com (Unregistered(d)) http://msrcsharing.yuku.com/sreply/19068 Tue, 16 May 2006 14:57:24 GMT http://msrcsharing.yuku.com/reply/19067/t/My-Diary-with-Copaxone.html#reply-19067
Sorry to hear you've had a rough time, hope the move goes OK.
Remember if you need to talk, just phone, text what ever.

I've had a call today. Copaxone to be delivered next Thursday, Waiting for the MS nurse to phone, i'll let you know how things go.

Take care

Sue XxX ]]> feeds@yuku.com (boozysuzy) http://msrcsharing.yuku.com/sreply/19067 Mon, 15 May 2006 21:37:17 GMT http://msrcsharing.yuku.com/topic/2056/t/My-Diary-with-Copaxone.html After losing my vision in one eye over night in January this year and then this spreading to the right eye soon after I was sent to London for tests, Was told that I had Optic Neuritis I had never heard of this I had large doses of steroids and this in time has led to the return of my vision all though left me Registered... ]]> feeds@yuku.com (vespula) http://msrcsharing.yuku.com/topic/2056 Tue, 27 Sep 2005 10:40:12 GMT