Tysabri Diary Update - Cheryl and Lauren

feeds@yuku.com (squiffy2) — Thu, 10 Dec 2009 11:41:49 GMT

2 of our longest running Tysabri users, Cheryl and Lauren, have sent in their 40th and 41st infusion updates. You can read their latest diary updates at MSRC: Get Involved : MSRC Interactive : Tysabri® User Diaries

STV news report on Ryan from Shine On Scotland's Vitamin D Campaign victory

feeds@yuku.com (squiffy2) — Tue, 08 Dec 2009 09:51:56 GMT

http://video.stv.tv/bc/stv-news-local-west-20091207/

Well done Ryan!

Chat Room today at 10am

feeds@yuku.com (squiffy2) — Tue, 08 Dec 2009 07:33:00 GMT

Hi all, Gentle reminder that the next chat room session is at 10am GMT today. I have posted about this on the ThisisMS forum as there is a very lively discussion going on on there with regards CCSVI and I am hoping that some of the particpants will come to the chat room to talk about CCSVI amongst themselves, and also with us here at the MSRC site as I know a number of you are very interested in this...

Holiday?

feeds@yuku.com (lancy) — Mon, 07 Dec 2009 15:12:00 GMT

Anybody know any good holiday vacations in in the North West that caters for me with my reducted mobility?

Cheers Lancy

Charity of Year Competition - FINAL DAY!

feeds@yuku.com (squiffy2) — Mon, 30 Nov 2009 07:01:00 GMT

Charity of the year competition!

Last day, 5% behind!

Please help the Multiple Sclerosis Resource Centre become Charity Of The Year 2009! http://tinyurl.com/d4akb5

Please forward to everyone of your friends/contacts!!

squiffs

symptoms changing

feeds@yuku.com (jsfgdevlin) — Sun, 29 Nov 2009 22:31:14 GMT

Hi

Been on Rebif for nearly 5 years now, not had an acute relapse for at least 6 months. But over the last six months I have been having regular, very small, symptons. Nothing bad, jumping legs, burning feet, dizzyness etc. The symptons last a couple of hours (or less) and then go again. But i would suggest that I would have some kind of sympton 2 or 3 times a week.

Been back to the consultant and he has sent me for another MRI scan, will get results in a fortnight or...

'MS will not make me any less magnificent': Marlo Donato Parmelee on coping with the disease

feeds@yuku.com (squiffy2) — Sun, 29 Nov 2009 06:58:50 GMT

Donna Karan manager Marlo Donato Parmelee is glamorous, smart…and suffering from multiple sclerosis. Here she tells Catherine O'Brien about her darkest hours - and the strength that these have given her...............

Read more:

Report on the CCSVI clinical trial being run in Buffalo, New York

feeds@yuku.com (squiffy2) — Sat, 28 Nov 2009 15:17:22 GMT

MS Relapse

feeds@yuku.com (Aquarius) — Sat, 28 Nov 2009 09:41:06 GMT

Can a relapse last for months? I have had this dizzy off balance thing for around 3 months and it is really getting me down. I always have residual dizzy feeling but could manage before but this off balance thing has shot my confidence and I am wary about going out. I just wonder if it can get better after months. Its frightening and depressing me. Sorry to be such a gloomy gus. Any advice very welcome. Thanks.

Shona xx

Exhaustion

feeds@yuku.com (pooples) — Fri, 27 Nov 2009 19:35:38 GMT

Hi
Diagnosed with ms 15 years ago and in many ways very lucky as I am still mobile,independant and working fulltime.I am coming up for 54 and able to retire from work with modest pension at 55. However despite being able to function physically I am not coping with the fatigue and constant exhaustion which is leaving me a jibbering wreck. My job is very demanding,my employer knows my medical history and is supportive but the work has to be done and I am really struggling with it.Medically...

Tysabri Diary Update - Cheryl and Tony

feeds@yuku.com (squiffy2) — Fri, 27 Nov 2009 14:06:15 GMT

Cheryl and Tony have kindly updated their online Tysabri Diaries. You can read their latest entries at MSRC: Get Involved : MSRC Interactive : Tysabri® User Diaries

New Pathways

feeds@yuku.com (Wizzie2) — Thu, 26 Nov 2009 20:50:09 GMT

Like a lot of people Im v interested to see how the CCSVI theory developes. However having skim read this months NP I was just interested to see what anyone elses opinion was on the theory that we all just need to give up chocolate?

Lizzie x

Nausea

feeds@yuku.com (Nellie) — Wed, 25 Nov 2009 13:03:18 GMT

I was wondering whether anyone else gets nausea on and off. It's very odd, it feels like travel sickness... except I can get it sat on the sofa! Has anyone found anything that helps other than travel sickness pills?

MSRC Statement on Chronic Cerebrospinal Venous Insufficiency (CCSVI) and Dr Paulo Zamboni's work

feeds@yuku.com (squiffy2) — Tue, 24 Nov 2009 10:49:19 GMT

"MSRC is very encouraged by the early results of Dr Paulo Zamboni's work. There is no doubt that this area warrants a great deal more study. This could represent a completely novel approach to MS research which, if proven to be relevant, could be a "sea change" in the understanding of the mechanisms involved in the condition. There has already been a huge amount of interest about this study and MSRC will continue to report on any and all developments in this very...

Charity of Year Competition

feeds@yuku.com (squiffy2) — Tue, 24 Nov 2009 09:32:11 GMT

With just 6 days to go, please vote for MSRC as Charity Of The Year!

http://tinyurl.com/ylc4b65

Tysabri Diary Update - Jill

feeds@yuku.com (squiffy2) — Mon, 23 Nov 2009 14:36:57 GMT
Jill has kindly sent in her latest update to her Tysabri Users Diary, you can read it at MSRC: Get Involved : MSRC Interactive : Tysabri® User Diaries : Jill's Tysabri Diary

Menopause and dizziness with ms

feeds@yuku.com (Aquarius) — Sat, 21 Nov 2009 13:17:05 GMT
Hi wonder if anyone has any advice i'm feeling a bit desperate this dizziness and off balance feeling is almost constant for the past 2 1/2 months!!! Going through menopause at the moment and wondered if it could possibly exacerbate existing symptoms I have always been slightly dizzy (but could cope) but not at the moment I've been on serc, stugeron, stemitil now back on serc. Waiting to see the neurologist at the moment (thats really scaring me too) but know I won't been able to...

Tysabri Diary Update - Deborah Penny

feeds@yuku.com (squiffy2) — Thu, 19 Nov 2009 09:09:29 GMT
Deborah has kindly sent in her latest Tysabr Diary upate, which you can read at MSRC: Get Involved : MSRC Interactive : Tysabri® User Diaries : Deborah Penny's Tysabri Diary

MSRC Choices Leaflets - new additions

feeds@yuku.com (squiffy2) — Wed, 18 Nov 2009 15:34:19 GMT

MSRC have launched two new editions of our information leaflets, Choices.

The new leaflets available are:...

Anyone had the swine flu jag/jab?

feeds@yuku.com (Jim) — Mon, 16 Nov 2009 18:11:04 GMT
Hello again folks.

I was up at the Docs recently for the annual flu jag/jab which i didn't bother about last year and consequently ended up paralysed from the waist down for a few days after catching it from my three year old nephew last Christmas day. I mentioned to Doc that I was concerned about the Immune System Boosting additive in the Pandemrix version of the swine flu vaccine and would it be possible to have the Celvapan instead? My Doc seemed to think this was a...

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